…that I just found, courtesy a social worker at UVA:
Many things in this list actively don’t apply to OM, but dammit–we’re rare. And it just might help for folks who are dealing with other cancers, too.
And boy howdy, will I be plunging deeply into this as soon as I can. I’ll let you know if it’s better than the “officially” OM sites–because frankly, many of the OM sites are drifting. They haven’t been maintained in years, and I have to suspect that it’s in part because there are so few of us, and in part because (frankly) so few of us live.
And because I’ve got a kid…
That’ll have to do for now. Time to go meet said kid at her bus. 🙂